My GP did warn me about the risk of choking, so I swallow small amounts at a time- then cough. Do have to use sips of water in place of the saliva I no longer have, and cough after every two swallows- typically seeing evidence of the food. Not sure if what I am swallowing are small clumps. I chew my single bread and cheese and meat sandwiches thoroughly.
Meanwhile, I continue losing weight: am now wearing the same size pants I did when I was in treatment! In fact, I went shopping yesterday and bought three blue jeans waist sizes 30 and 31- was a 33.
Have my first Speech Therapist appointment next Monday.while still waiting to hear from the Surgery Center to just meet with a local Surgeon. Think of what foods get stuck - those you cant have without a gallon of water. My speech therapis taught me all this, I get blank looks from Drs and Nutitionists if I mention Clumpability, but think on it, its real. My favorite of all time - salad, clumps insanely, I feel like lettuce is strangling my vocal chords. Spaghetti is ok, in small bits, with lots of sauce to make it slippery. If some gets stuck going the wrong way, it'll attract more, it gets stuck to itself. Ok, small explanation as I have a long, long day tomorrow. You have to think of food and it's "clumpability factor" I'm 10+ years out, and you're dealing with a lot more than I ever had to. I think of the Beatles' song "When I'm 64." I'm still 64, and now this, oh boy.And, I do wish you the best of luck in your struggles with the "new normal," Suez. Have been eating thin pizzas, and last night bronchial coughs showed me the pasta was getting into my windpipe. appointment this PM and plan to give the go-ahead for a FT. Though I don't care much for what your ENT told you, I am very appreciative of the info/knowledge you have provided me. Lol ( That's what my friends say!) Keep posting and let us know how your doing. I've been very discouraged myself cause they said I might need a trach put in my neck. My ENT is the director of all the doctors at my hospital. The structures in your throat sometimes fail to work properly and the scar tissue can narrow your airway depending on your situation. Hopefully you won't have difficulty breathing like me. New scar tissue would form and also added swelling would develop. He said no because that would create more problems. I asked my ENT doctor if they could remove the scar tissue. I'm on a feeding tube and have trouble swallowing because of build up scar tissue. I finished my treatments and I'm a little over a year out. Dave I had treatments for base of the tongue & tonsil cancer.
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